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I was diagnosed with fibromyalgia years ago. Being me, I’ve ignored my symptoms, haven’t gone back to the specialist who diagnosed me, and have chosen to happily live in the Land of Denial (which is my favorite place in the world). However, my time of pretending nothing is wrong is rapidly coming to an end. As I’ve aged, my symptoms have worsened, and I can’t keep my head stuck in the sand for much longer. So, what to do?
Well, to be a sensible adult, I decided to check out what the medical field has to say about this nasty disease. Just as I thought, there are some new findings, but mostly the information hasn’t changed that much. The diagnosis procedure has changed a little, and there are new medications that may be prescribed, but that’s really the only change. Back when I was diagnosed, I was told not to exercise as it was thought to make the pain worse. Due to my own feelings, I continued to exercise and felt better. Now the belief is to exercise (within reason) and use flexibility exercises to keep your flexibility level high. This also is something that I’ve found out – if I don’t exercise and remain flexible the pain actually increases, I can get depressed and nothing good comes of it.
One of the worst problems for me is the need for sleep. I have had long years of not sleeping more than four hours a night. There have been various reasons for this…first it was babies and young children, then it was a stressful and frankly unsafe home life, now I sleep on the living room couch due to a husband who snores (and no, doesn’t have sleep apnea) where I feel unsafe, and others living in the house make too much noise for me to go to bed early. However, since I’ve gotten a puppy, I’ve been trying to get myself into bed earlier, and it does work if I make the bed up earlier and jump into it once my son and his girlfriend have finished eating dinner.
If you were diagnosed with a disease that you’ve not paid attention to lately, I suggest that you research it again. I actually ordered the Mayo Clinics’ book on Fibromyalgia and am waiting for it to arrive. I’m hoping that there will be some information in there regarding coping with the pain and the accompanying fatigue that I suffer from. If you have fibro, I’ve left some links for you below. Educate yourself it may help you to successfully cope.
https://www.mayoclinic.org/diseases-conditions/fibromyalgia/diagnosis-treatment/drc-20354785